There are 4 steps to this condition and the amount of time they last differ from person to person and step to step.
This is a genetic defect in the X chromosome passed on by the mother to the child.
Only girls will survive; boys do not have a strong X to counteract the bad X and therefore, will be stillborn or miscarried.
Many complications can accompany the prominant ones with this disorder...I will let you know about them a little later.....
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Hi, thanks for sharing your story. I really hope you and your daughter are doing great after all this.
ReplyDeleteMy daughter was just diagnosed with IP. My wife and I are hopeless, but seeing that people have also been through this gives us hope.
I have a few questions, if you don't mind. when did stage 2 start exactly? Did it overlap with stage 1?
What other complications did your daughter have and how did you address them? How is she doing now? Was she able to have a normal and happy childhood?
Do you have any advice?
Thank you!